Parkinson Social NetworkJanuary Staying Connected Newsletter
January’s Events
Making The Most of 2026!
Tuesday, January 13th
10:00am – 11:30am ET (9am CT| 8am MT | 7am PT)
Share ideas for making the most of year! Challenge yourself, grow and expand your mind and body. Find the balance while monitoring your stress. Come with ideas, leave with a plan–or at least the start of a plan.
Watch & Discuss: How the Latest Parkinson’s Research Supports Exercise Mindset, and Hope
Wednesday, January 21st
10:00am – 11:30am ET (9am CT| 8am MT | 7am PT)
We will watch the Davis Phinney Foundation YouTube video: How the Latest Parkinson’s Research Supports Exercise, Mindset, and Hope together online.
After watching this video, we will have a live facilitated discussion about what we have watched.
Evening Carepartner Gathering
Tuesday, January 27th
7:00pm – 8:00pm ET (6pm CT| 5pm MT | 4pm PT)
Our Evening Carepartner Gathering is a group for caregivers, carepartners, family members, and friends to connect and share.
New Videos/Recordings
of Our Recent Programs:
The PSN Buddy Program
Our Buddy Program is an opportunity for…
- Someone newly diagnosed with Parkinson’s to speak directly with someone living with Parkinson’s to ask questions of those with first-hand experience.
- Persons living with Parkinson’s to speak with one-on-one another to ask questions and share experiences.
- Those living with Parkinson’s to give back by sharing their experience with other individuals.
Whether you are newly diagnosed, or are currently living with Parkinson’s and would like to participate, or have any questions about the program, please
- Call: 571-286-5000, or
- Email: buddy@parkinsonsocialnetwork.org
Happening In Our Parkinson’s Community…
- PERSEVERE is a fully virtual, national trial for family caregivers of loved ones with Parkinson’s or Lewy Body Disease with cognitive change. At this time, we are hoping to reach caregivers currently caring for, or previously cared for, a loved one whose had cognitive symptoms or hallucinations for more than 2 years. To sign up, please visit https://redcap.link/PERSEVERE1
- Emily Peron, a PhD student at VCU is looking for volunteers in a research study about social connections and attitudes about aging in people with Parkinson’s disease (PD).While there is no direct benefit to study participants at this time, 10 people will be randomly selected to receive a $60 Amazon gift card. For more information and to complete the survey, please follow this link: https://vcupharmacy.co1.qualtrics.com/jfe/form/SV_5AurWsy0cBEs8qa
- UVA Moves – PD Clinic Newsletter Fall edition is available at this link – The newsletter includes clinic articles and clinical trials information.
- Perpetual Parkinson’s Events/Resources
- Dr. Dorsey mentioned in his talk in August, that you can take action today and help advance research by signing up for Brain & Environment registry!
- If you are veteran with Parkinson’s, the Richmond PADRECC has many support programs for you and your carepartner. For more information, download the PADRECC flyer or contact Jessica Kaplan at jessica.kaplan2@va.gov or 804-675-5931.
- APDA Virginia hosts exercise groups and events (online and in-person) around the state of Virginia. Learn more about these programs: https://www.apdaparkinson.org/community/virginia/
- Partners in Parkinson’s – Discussion and support for care partners and families of people with Parkinson’s Disease.
Date/Time: First Wednesday of every month / 12:00 PM EST
Meeting ID: 892 0510 3333
Invite Link: https://apdaparkinson.zoom.us/j/89205103333 - Virginia Lifespan Respite Voucher Program is available for residents of Virginia. Visit the Division for Aging Services site to learn more or apply.
- Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or call 540-665-4634.
- Speech Therapy Sessions are available at your fingertips – free and live! The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu. (CLICK for Flyer)
- Real Talk: Care Partner Discussion Group 1st and 3rd Thursday of Each Month, hosted by: PMD Alliance exclusively for Care Partners supporting someone on their journey with a movement disorder. NO REGISTRATION REQUIRED. Use this link to join.
- Power Over Parkinson’s has an extensive listing of programs in the Richmond area for exercise and education, visit their website for more information.
- Live in Maryland? MAPS has an extensive support group listing on their website.
- Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
- SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
- Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.
Early bird registration ends on January 15, 2026!
Parkinson Social Network (PSN) is Here to Help!
Are you searching for a resource or more information about living with Parkinson’s disease? Parkinson Social Network volunteers can help! Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org with your question!
December Staying Connected Newsletter
As the year winds down, we are grateful for your support of Parkinson Social Network’s programs! Due to the upcoming holidays, our virtual meetings for December are cancelled. Our virtual meetings in January are on Tuesday 1/13, Wednesday 1/21 and Tuesday 1/27! All our best to you and yours!
— All Volunteer Board of Directors, Parkinson Social Network
ICYMI: In Case You Missed It!
Did you miss Why is it so hard to get a good night’s sleep with Parkinson’s disease? Dr. Lawrence M. Stein, MD? Click the play button above to watch the video or view on our YouTube channel!
Give Back To The Community – Be A PSN Buddy
Would you be willing to help a fellow Person-with-Parkinson’s Disease? We hope you will.
Frequently, PSN receives inquiries from those newly diagnosed with Parkinson’s Disease, as well as people who are not newly diagnosed, seeking to speak with a fellow Parkinsonian on a one-on-one basis.
If you wish to help your fellow Parkinsonians by engaging in a telephone conversation, please let us know! With your permission, we will provide your telephone number and email address on request. We will, of course, let you know each time we share this information.
To participate, kindly email board@parkinsonsocialnetwork.org, or call our office at 571-286-5000.
Happening In Our Parkinson’s Community…
- PERSEVERE is a fully virtual, national trial for family caregivers of loved ones with Parkinson’s or Lewy Body Disease with cognitive change. They are especially looking for:
–Caregivers currently caring for a loved one whose had cognitive symptoms or hallucinations for less than 3 years.
–All current or former caregivers from underrepresented populations (male, rural-dwelling or non-Caucasian). To sign up, please visit https://redcap.link/PERSEVERE1 - Emily Peron, a PhD student at VCU is looking for volunteers in a research study about social connections and attitudes about aging in people with Parkinson’s disease (PD).While there is no direct benefit to study participants at this time, 10 people will be randomly selected to receive a $60 Amazon gift card. For more information and to complete the survey, please follow this link: https://vcupharmacy.co1.qualtrics.com/jfe/form/SV_5AurWsy0cBEs8qa
- UVA Moves – PD Clinic Newsletter Fall edition is available at this link – The newsletter includes clinic articles and clinical trials information.
- Perpetual Parkinson’s Events/Resources
- Dr. Dorsey mentioned in his talk in August, that you can take action today and help advance research by signing up for Brain & Environment registry!
- If you are veteran with Parkinson’s, the Richmond PADRECC has many support programs for you and your carepartner. For more information, download the PADRECC flyer or contact Jessica Kaplan at jessica.kaplan2@va.gov or 804-675-5931.
- APDA Virginia hosts exercise groups and events (online and in-person) around the state of Virginia. Learn more about these programs: https://www.apdaparkinson.org/community/virginia/
- Partners in Parkinson’s – Discussion and support for care partners and families of people with Parkinson’s Disease.
Date/Time: First Wednesday of every month / 12:00 PM EST
Meeting ID: 892 0510 3333
Invite Link: https://apdaparkinson.zoom.us/j/89205103333 - Virginia Lifespan Respite Voucher Program is available for residents of Virginia. Visit the Division for Aging Services site to learn more or apply.
- Shenandoah University – Loudoun Campus is offering free SPEAK OUT! speech therapy for those living with Parkinson’s, in-person and virtual. Click here to see their flyer for more information or contact Myra Schatzki, Director of Clinical Education at myra.schatzki@su.edu or call 540-665-4634.
- Speech Therapy Sessions are available at your fingertips – free and live! The University of Utah is a SPEAK OUT! Therapy and Research Center for the state of Virginia and the District of Columbia (DC) providing SPEAK OUT! voice therapy at no cost, contact them at 801-581-3506 or email speechpath@utah.edu. (CLICK for Flyer)
- Real Talk: Care Partner Discussion Group 1st and 3rd Thursday of Each Month, hosted by: PMD Alliance exclusively for Care Partners supporting someone on their journey with a movement disorder. NO REGISTRATION REQUIRED. Use this link to join.
- Power Over Parkinson’s has an extensive listing of programs in the Richmond area for exercise and education, visit their website for more information.
- Live in Maryland? MAPS has an extensive support group listing on their website.
- Dance for Parkinson’s program at James Madison University – JMU has in-person and Zoom online classes. For more information about this program, visit their website here.
- SPEAK OUT! Online Home practice sessions are available each day at 11am ET/10am CT/9am MT/8am PT from Parkinson Voice Project.
- Sign up for PD Avengers TODAY! PD Avengers is the Global Alliance to End Parkinson’s Disease.
Parkinson Social Network (PSN) is Here to Help!
Are you searching for a resource or more information about living with Parkinson’s disease? Parkinson Social Network volunteers can help! Call our office at 571-286-5000 or send us email at board@parkinsonsocialnetwork.org with your question!
Parkinson Social Network 